Why I chose my blog name-

I have a very young friend named Kyle who told me about HIS world- a place of positivity, love, peace and happiness. He is an inspiration to me as he always sees the best in everything life throws your way. I am going to face this challenge like Kyle would-with positive thoughts and lots of laughter! Please join me in my world, on my journey to conquer this disease. As my "sisters" and I used to sing at the top of our lungs- I Will Survive!!!

Wednesday, January 25, 2012

Life as I know it

Right now, life as I know it is great! I am healthy and happy. My family is great and finally, all back together in Florida. I love having my grown children around all the time. It brings me such joy! I am finally back at work more frequently and am really enjoying it. I am involved in several cancer charities- Lymphona Research Foundation, LLS, and Little Smiles- and am getting ready for the upcoming fundraisers. Somehow i managed to be co chairperson of the auction committee for Little Smiles and luckily my dear sweet friends came through with some great donations! Thank you all so much!!!!

Although I am happy and well, I still have things that way heavy on my mind. I am still devastated and angry (as I know she is) about the news my friend received that her cancer is back. She is doing great right now! Back at work, exercising and even running the Race for the Cure this weekend. God bless her because I can't even run it. I will be walking instead, in support of her and my other friend who has breast cancer. It is pretty sad to know that you can walk in an event every weekend in support of different cancers and the search for a cure. Why can't we find cures for these deadly diseases? Lindsey posted an article on Facebook about a teenager who may have discovered a cure! Interesting how a teenager might be able to figure it out but scientists and doctors and pharmaceutical companies can't. I wonder why that is? Maybe because there is no money involved. Just saying.

 I am also not happy with the insurance companies this year. As most of you know, cancer patients need to have follow up scans to make sure that we are still healthy. As I mentioned in an earlier post, I was supposed to have a pet scan in August but at the last minute, Aetna changed their minds and rescinded their approval. I went ahead and had a cat scan instead (which is not as detailed) and got a good report. I was scheduled for my next pet scan in December and again, they denied the test. Even after a peer review with my doctor!! I had another cat scan and did get good results but it is still disheartening. I am not the only one this is happening to. I have another friend in the same situation. We both resent the fact that insurance companies are messing with our lives. They have no right to deny necessary tests. They should not be in control of my life or anyone else's for that matter!!!!  Again, just saying.

When I get angry and frustrated with my situation, I draw inspiration, strength and positivity from a young friend who is getting ready to deliver a beautiful baby with a life threatening disease. She and her husband are dealing with this through love, faith and hope. She expresses herself and her feelings so beautifully on her blog with such grace and openness. I am moved to tears every time I read it. I ask that everyone say a prayer for this wonderful young family. I know how amazing the power of prayer can be and they need your prayers now!

 I love my family and I love you all!
 XO
 God Bless

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